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Roly Clulow - ArticlesYears of experience with Disability, it's complexity and survival are tackled head on in these articles. Roly has been wheelchair bound with myositis for some 10 years now and he has numerous articles published in magazines in South Africa and on various sites on the internet.
The day I walked on waterThis has got to stop. I have heard of magnetic attraction, I know I’m good looking and all that other flattering stuff, but this is ridiculous. How do I demagnetise myself from lizards? Going back in timeI was in the fortunate position to be able to sit and watch three youngsters dragging their soapbox up the hill to the designated start point, where the assault on their version of the land speed record would begin. This “chariot” in my opinion deserved nothing better than to be placed in a place of honour, on top of the weekend barbecue fire. Mind your mannersWhen I visit a restaurant it’s usually best to go with family or close friends who know how I feed myself, or I run the risk of them rushing off in embarrassment and horror at the first slurp or dribble that is totally alien to them but has become the norm for me. Yes, I slurp, dribble, and miss my mouth with my fork and spill large quantities of food on my bib come serviette or my shirt front if I miss the bib. Depression and II really hate this disease and what it’s doing to my body, my life and my family. I can’t go on with the pain and the mental anguish. The uncertainty and the fear are crushing my spirit. I don’t want to be here anymore. Please take me away Lord. I know I’m being selfish by wanting to leave this planet because my family and friends will miss me when I’m gone. (I hope) My faithful friendsToday the sun is trying hard to burn off the clouds and the rain has stopped, for a while. I hear the little birds twittering and tweeting in the bush outside my window. My two little mongrel friends jump up on the bed to say good morning. Forgotten is the scolding they got daily from their grumpy old friend who was miserable and unfriendly for the past two or three days. Oh! How I hate youOh! How I hate this disease today.
The aches, the pains, the cold, the loneliness and the quiet. All eating at my hands, feet, knees and heart even though I am warmly dressed and wrapped in a blanket. Wheelchairs – Transportation & Life insuranceThe determination to stay mobile has had it’s trials and tribulations since being advised that I have a disease called Inclusion Body Myositis.
I have been a very wobbly walker for the past eight years or so and progressed from wobbly unaided to wobbly aided over this space in time. My first walking stick was one I inherited from my mother in law. A lesson in humilityWhen I woke up this morning I was angry
Angry because the dogs woke me up
Angry because I couldn't turn over Understanding Dysphagia (a part of having Myositis)One of the many extra complications involved with Myositis and many other neuro muscular disorders is Dysphagia. (swallowing difficulty) Acceptance before progressIf you speak to any recovering alcoholic or drug addict who has attended any form of rehabilitation, they will tell you that the therapists all want the admission and acceptance that there is a problem, before the healing process and rehabilitation can begin. If I as an alcoholic deny that I have a drinking problem or merely give verbal agreement to it, I may just as well never attend any rehab meetings.
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